Ostomy Assessment Systematic Integration of Studies (OASIS): Maternal, Child and Youth Assessment Scoping Review
DOI:
https://doi.org/10.63354/cjwoc.v2i2.17471Keywords:
ostomy, nursing, nursing assessment, surgical stomas, maternal-child nursing, scoping reviewAbstract
Background: Unique physical and psychosocial challenges are present in the maternal, child, and youth population. Despite the complexities of living with or caring for individuals living with an ostomy in this population, few studies focus specifically on this population. This study seeks to better understand the specific challenges, outcomes, and care strategies for this population, highlighting the unique considerations and educational needs for the assessment of the individual living with an ostomy, as well as their families and caregivers.
Methods: As part of the Ostomy Assessment Systematic Integration of Studies (OASIS) study, this scoping review explores evidence related to ostomy assessment in maternal, child, and youth populations. A systematic search of MEDLINE and CINAHL was conducted in January 2021 using the Joanna Briggs Institute and the PRISMA-ScR framework to guide the study. Data were extracted, analyzed using content analysis, and organized using the PAGER framework.
Results: Of the 42,059 results obtained from the search, 26 included studies focused onthe maternal, child, and youth populations. Three themes emerged from the data, including pregnancy, family dynamics, and management and complications in newborns. Results revealed opportunities to improve ostomy assessment practices to support the maternal, child, and youth populations.
Conclusions: Ostomy assessment in the maternal, child, and youth population requires evidence-informed approaches that consider factors unique to this population. Further research is needed to guide best practice.
References
1. United Ostomy Associations of America. What is an ostomy? United Ostomy Associations of America. Accessed February 20, 2026. https://www.ostomy.org/what-is-an-ostomy/
2. LeBlanc K, Heerschap C, Martins L, Butt B, Wiesenfeld S, Woo K. The financial impact of living in Canada with an ostomy; a cross-sectional survey. J Wound Ostomy Continence Nurs. 2019;46(6):505-512. doi:10.1097/won.0000000000000590 DOI: https://doi.org/10.1097/WON.0000000000000590
3. The PAPooSE Study Group. Pregnancy outcomes after stoma surgery for inflammatory bowel disease: the results of a retrospective multicentre audit. Colorectal Dis. 2022 Jul;24(7):838-844. doi:10.1111/codi.16098 DOI: https://doi.org/10.1111/codi.16098
4. Mørkhagen AE, Nortvedt L. A qualitative study on how younger women experience living with an ostomy. Int J Environ Res Public Health. 2023;20(9):5627. doi:10.3390/ijerph20095627 DOI: https://doi.org/10.3390/ijerph20095627
5. Whiteley I, Gullick J. The embodied experience of pregnancy with an ileostomy. J Clin Nurs. 2018;27(21-22):3931-3944. doi:10.1111/jocn.14601 DOI: https://doi.org/10.1111/jocn.14601
6. Forest-Lalande L. Best practice guidelines for ostomy care in neonates, children, and adolescents: an executive summary. J Wound Ostomy Continence Nurs. 2023;50(5):381-385. doi:10.1097/ WON.0000000000001001 DOI: https://doi.org/10.1097/WON.0000000000001001
7. David JG, Moreno S, Daniel R, Pall H. The perceived ostomy educational needs of pediatric patients with inflammatory bowel disease and their caregivers. J Pediatr Gastroenterol Nutr. 2020;70(6):849-852.
doi:10.1097/MPG.0000000000002665 DOI: https://doi.org/10.1097/MPG.0000000000002665
8. Vogel I, Schattenkerk , Venema E, et al. Major stoma related morbidity in young children following stoma formation and closure: a retrospective cohort study. J Pediatr Surg. 2022;57(10):402-406. doi:10.1016/j.jpedsurg.2021.11.021 DOI: https://doi.org/10.1016/j.jpedsurg.2021.11.021
9. Mohr LD. Growth and development issues in adolescents with ostomies a primer for the WOC nurses. J Wound Ostomy Continence Nurs. 2012;39(5):515-521. doi:10.1097/won.0b013e3182659ede DOI: https://doi.org/10.1097/WON.0b013e3182659ede
10. Nicholas DB, Swan SR, Gerstle TJ, Allan T, Griffiths AM. Struggles, strengths, and strategies: an ethnographic study exploring the experiences of adolescents living with an ostomy. Health Qual Life Outcomes. 2008;6(1):114. doi:10.1186/1477-7525-6-114 DOI: https://doi.org/10.1186/1477-7525-6-114
11. Giordano V, Iovino P, Corvese F, Vellone E, Alvaro R, Villa G. Caregiver contribution to self-care and its associated variables among caregivers of ostomy patients: results of a cross-sectional study. J Clin Nurs. 2022;31(1-2):99-110. doi:10.1111/jocn.15851 DOI: https://doi.org/10.1111/jocn.15851
12. NasiriZiba F, Kanani S. The effect of education with a family-centered and client-centered approach on the quality of life in patients with stoma. J Caring Sci. 2020;9(4):225-230. doi:10.34172/jcs.2020.034 DOI: https://doi.org/10.34172/jcs.2020.034
13. Peters MDJ, Godfrey C, McInerney P, Munn Z, Tricco AC, Khalil H. Scoping reviews. In: Aromataris E, Lockwood C, Porritt K, Pilla B, Jordan Z, eds. JBI Manual for Evidence Synthesis. JBI; 2024. doi:10.46658/JBIMES-24-09 DOI: https://doi.org/10.46658/JBIMES-24-09
14. Heerschap C, Butt B, Franco F, et al. Ostomy Assessment Systematic Integration of Studies (OASIS): assessment tools scoping review. Can J Wound, Ostomy Continence. 2026;2(1):13-24. DOI: https://doi.org/10.63354/cjwoc.v2i1.17439
15. Elo S, Kyngäs H. The qualitative content analysis process. J Adv Nurs. 2008;62(1):107-115. doi:10.1111/j.1365-2648.2007.04569.x DOI: https://doi.org/10.1111/j.1365-2648.2007.04569.x
16. Bradbury-Jones C, Aveyard H, Herber OR, Isham L, Taylor J, O’Malley L. Scoping reviews: the PAGER framework for improving the quality of reporting. Int J Soc Res Methodol. 2022;25(4):457-470. doi:10.1080/13645579.2021.1899596 DOI: https://doi.org/10.1080/13645579.2021.1899596
17. Aguayo P, Fraser JD, Sharp S, St Peter SD, Ostlie DJ. Stomal complications in the newborn with necrotizing enterocolitis. J Surg Res. 2009;157(2):275-278. doi:10.1016/j.jss.2009.06.005 DOI: https://doi.org/10.1016/j.jss.2009.06.005
18. Dozois EJ, Wolff BG, Tremaine WJ, et al. Maternal and fetal outcome after colectomy for fulminant ulcerative colitis during pregnancy: case series and literature review. Dis Colon Rectum. 2006;49(1):64-73. doi:10.1007/s10350-005-0210-x DOI: https://doi.org/10.1007/s10350-005-0210-x
19. Gopal KA, Amshel AL, Shonberg IL, Levinson BA, VanWert M, VanWert J. Ostomy and pregnancy. Dis Colon Rectum. 1985;28(12):912-916. doi:10.1007/BF02554305 DOI: https://doi.org/10.1007/BF02554305
20. Hyams JS, Grand RJ, Colodny AH, Schuster SR, Eraklis A. Course and prognosis after colectomy and ileostomy for inflammatory bowel disease in childhood and adolescence. J Pediatr Surg. 1982;17(4):400-405. doi:10.1016/s0022-3468(82)80498-3 DOI: https://doi.org/10.1016/S0022-3468(82)80498-3
21. Merenda LA, Duffy T, Betz RR, Mulcahey MJ, Dean G, Pontari M. Outcomes of urinary diversion in children with spinal cord injuries. J Spinal Cord Med. 2007;30(Suppl 1):S41-S47. doi:10.1080/10790268.2007.11753968 DOI: https://doi.org/10.1080/10790268.2007.11753968
22. Mohr LD, Hamilton RJ. Adolescent perspectives following ostomy surgery: a grounded theory study. J Wound Ostomy Continence Nurs. 2016;43(5):494-498. doi:10.1097/WON.0000000000000257 DOI: https://doi.org/10.1097/WON.0000000000000257
23. Mollitt DL, Malangoni MA, Ballantine TV, Grosfeld JL. Colostomy complications in children. An analysis of 146 cases. Arch Surg. 1980;115(4):455-458. doi:10.1001/archsurg.1980.01380040079014 DOI: https://doi.org/10.1001/archsurg.1980.01380040079014
24. Rokhsar S, Harrison EA, Shaul DB, Phillips JD. Intestinal stoma complications in immunocompromised children. J Pediatr Surg. 1999;34(12):1757-1761. doi:10.1016/s0022 3468(99)90306-8 DOI: https://doi.org/10.1016/S0022-3468(99)90306-8
25. Schwarz KB, Ternberg JL, Bell MJ, Keating JP. Sodium needs of infants and children with ileostomy. J Pediatr. 1983;102(4):509-513. doi:10.1016/ s0022-3476(83)80175-9 DOI: https://doi.org/10.1016/S0022-3476(83)80175-9
26. Sujka J, Alemayehu H, Benedict LA, Sobrino JA, St Peter SD, Fraser JD. Outcomes of ostomy location in children: placement of the ostomy at the umbilicus. J Laparoendosc Adv Surg Tech A. 2019;29(2):243-247. doi:10.1089/lap.2018.0185 DOI: https://doi.org/10.1089/lap.2018.0185
27. Dunn M, Roberts JB, Smith PJ, Slade N. The long-term results of ileal conduit urinary diversion in children. Br J Urol. 1979;51(6):458-461. doi:10.1111/j.1464-410x.1979.tb03578.x DOI: https://doi.org/10.1111/j.1464-410X.1979.tb03578.x
28. Hudson CN. Ileostomy in pregnancy. Med Chir Dig. 1973;2(6):359-361. DOI: https://doi.org/10.1007/BF02475549
29. Rees BI, Thomas DF, Negam M. Colostomies in infancy and childhood. Z Kinderchir 1982;36(3):100-102. doi: 10.1055/s-2008-1059871 DOI: https://doi.org/10.1055/s-2008-1059871
30. Lister J, Webster PJ, Mirza S. Colostomy complications in children. Practitioner. 1983;227(1376):229-237.
31. Patwardhan N, Kiely EM, Drake DP, Spitz L, Pierro A. Colostomy for anorectal anomalies: high incidence of complications. J Pediatr Surg. 2001;36(5):795-798. doi:10.1053/jpsu.2001.22963 DOI: https://doi.org/10.1053/jpsu.2001.22963
32. Singh M, Owen A, Gull S, Morabito A, Bianchi A. Surgery for intestinal perforation in preterm neonates: anastomosis vs stoma. J Pediatr Surg. 2006;41(4):725-729. doi:10.1016/j.jpedsurg.2005.12.017 DOI: https://doi.org/10.1016/j.jpedsurg.2005.12.017
33. Bezerra Maia EM, Assis GM. Perception of the parents of children with intestinal stoma regarding the nursing orientations. Estima. 2019;17. Accessed July 27, 2026. https://www.revistaestima.com.br/estima/article/view/663
34. Melo MC, Vilas-Boas BNF, Martins BL, Vasconcellos AWA, Kamada I. Stomized children care practices: narratives of relatives. Rev Bras Enferm. 2020;73(2):e20180370. doi:10.1590/0034-7167-2018-0370 DOI: https://doi.org/10.1590/0034-7167-2018-0370
35. Lockhat A, Kernaleguen G, Dicken BJ, van Manen M. Factors associated with neonatal ostomy complications. J Pediatr Surg. 2016;51(7):1135-1137. doi:10.1016/j.jpedsurg.2015.09.026 DOI: https://doi.org/10.1016/j.jpedsurg.2015.09.026
36. Kargl S, Wagner O, Pumberger W. Ileostomy complications in infants less than 1500 grams - frequent but manageable. J Neonatal Surg. 2017;6(1):4. doi:10.21699/jns.v6i1.451 DOI: https://doi.org/10.21699/jns.v6i1.451
37. Crealey M, Walsh M, Awadalla S, Murphy JFA. Managing newborn ileostomies. Ir Med J. 2014;107(5):146-148. http://hdl.handle.net/10147/316721
38. Ameh EA, Mshelbwala PM, Sabiu L, Chirdan LB. Colostomy in children-an evaluation of acceptance among mothers and caregivers in a developing country. S Afr J Surg. 2006;44(4):138-139.
39. Olejnik B, Maciorkowska E, Lenkiewicz T, Sierakowska M. Educational and nursing problems of parents of children with stoma. Rocz Akad Med Bialymst. 2005;50(Suppl 1):163-166.
40. Van Zoonen AG, Schurink M, Bos AF, Heineman E, Hulscher JB. Ostomy creation in neonates with acute abdominal disease: friend or foe? Eur J Pediatr Surg. 2012;22(4):295-299. doi:10.1055/s-0032-1313346 DOI: https://doi.org/10.1055/s-0032-1313346
41. Bouwknegt DG, van der Weide AHC, Dijkstra G, et al. Pregnancy with a stoma is feasible, though associated with manageable complications. Inflamm Bowel Dis. 2025;31(8):2195-2203. doi:10.1093/ibd/izae301 DOI: https://doi.org/10.1093/ibd/izae301
42. Mulyani RD, Anggraeni MD. Colostomy care education to increase the knowledge and skills of parents caring for children with a stoma. Br J Nurs. 2025;34(6):S14-SII. doi:10.12968/bjon.2024.0031 DOI: https://doi.org/10.12968/bjon.2024.0031
43. Uzsen H, Yaz SB, Gumus M. The effect of ostomy on pediatric patient and family in nursing: a systematic review. J Pediatr Surg Nurs. 2021;10(4):153-158. doi:10.1097/JPS.0000000000000313 DOI: https://doi.org/10.1097/JPS.0000000000000313
44. Cho YJ, Kwon H, Kim SC, Kim DY, Namgoong JM. Enterostomy-related complications in very low birth weight infants: a single-center experience. Adv Pediatr Surg. 2023;29(1):17-23. doi:10.13029/aps.2023.29.1.17 DOI: https://doi.org/10.13029/aps.2023.29.1.17
45. Alghamdi HA, Alqahtani MSM, Asiri HMM, et al. Investigating colostomy-related morbidity in children following stoma formation and closure in a tertiary hospital, Abha, Saudi Arabia: a retrospective cohort study 2024. BMC Pediatr. 2024;24(1):630. doi:10.1186/s12887-024-05089-z DOI: https://doi.org/10.1186/s12887-024-05089-z
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